courses and events
november 27-29, Porto Alegre, RSNews
Brazil promotes actions for the diagnosis of rare diseases with UDNI manifesto
On April 29, the world celebrates "Undiagnosed Day" to give visibility to patients who have a rare disease that has not yet been diagnosed. To mark the date, the Undiagnosed Diseases Network International (UDNI) launched a global manifesto focused on...
Third edition of Conexões Raras brings exclusive interview with Minister of Health
The third edition of Conexões Raras, a quarterly newsletter from Casa dos Raros, is now in circulation. The publication, from January-March 2026, features an exclusive interview with the Minister of Health, doctor Alexandre Padilha, who...
February 28 reinforces the importance of diagnosis on World Rare Disease Day
This February 28th, the calendar marks more than the end of a month; marks the wake-up call for a journey of overcoming that affects millions of Brazilians. World Rare Disease Day was chosen to illuminate the reality of families who often live for...
Read issue no. 2 of Conexões Raras, newsletter from Casa dos Raros
Edition no. 2 of Conexões Raras (Oct-Dec 2025), details advances in research into Huntington's Disease, as well as studies involving MPS III. It also explains optical mapping of the genome, an innovative technique that has been applied by a...
